I wanted to first say thank you for sharing you stories. It has made this so much easier for me to see that there are other people who understand what we are going through. We went a month ago for our third trimester scan and everything was great until they got to his brain. The tech said the ventricles were a bit large but she would have to get the doctor to check. Needless to say after leaving the appointment, I wanted to curl up in a ball and escape reality. I had never heard of Hydrocephalus which is odd since it isn't really all that rare. He has symetrical swelling on both sides. It measured 1.9cm the first time and has gone from 1.5cm-1.7cm the last few times. Our last visit it went up to 2.4cm. We have gone back every week to get a scan and also have had an MRI done. I happen to have alot of friends in the medical field and besides the wonderful Radiologist who spoke with us at Childrens in Dallas, I have had three other Radiologists look at the films and they see no blockage of any kind. They also say he has very good brain growth around the ventricles. I would highly recommend getting an MRI if you can. The doctors can see so much more and it can at least rule out what it isn’t. If you do have this done, make sure they explain what is about to take place. I know what an MRI is but the actual procedure is a bit unnerving and you may want to be a little sedated. That being said, since there is no blockage they still can’t tell us why it is happening. We have not done the amino yet b/c if they take him early we will have to have it done and I don’t want to do it twice. The good news is no one seems to think it is chromosomal either. The radiologist at children’s seemed positive that it is a mild case and said she has seen it go away on its own. It is just very frustrating to see my little baby and not be able to help him. I realize they can’t tell me what is ahead but it makes it hard to try and prepare myself. My advice thus far would be: 1.) Get a second opinion 2.) Get an MRI 3.) Find a good neuro surgeon (just in case) –we do not live in Dallas but through research of the person who does the shunt surgery in my town, I didn’t get positive reviews and therefore he won’t be touching my little boy!!!! 4.) PRAY!!!!!!!!!!!
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