This is the place where you can share your stories to give other parents much needed information about what they might be able to expect. There are many different causes of hydrocephalus and every case is different, but it is still helpful to hear from people that have actually been through this.

**Note - This feature has recently been upgraded so that you can add updates to your original story. If you have added updates in the past I have moved them to be with your original story. You can now add updates by going to your original story and clicking on "Add Update" at the top of the page.
 
Stories Shared Here on FetalHydrocephalus.com

If you would like to share a story, please click here.
 
Emily Hope  (Updated On: 7/7/2010)
MY GIRL MELIKA  (Updated On: 7/5/2010)
baby robert  (Updated On: 7/4/2010)
Our little Baby Cannon  (Updated On: 7/2/2010)
Our Brian  (Updated On: 6/21/2010)
KYLAH HAS AN ANGEL WATCHING OVER HER  (Updated On: 3/29/2010)
Thane's Story  (Updated On: 3/23/2010)
Sweet Baby GAGE  (Updated On: 2/8/2010)
Blake Alexander Cotten 4-17-2008 Our Angel Boy  (Updated On: 1/18/2010)
Parker's Story by TurtleMom  (Updated On: 12/11/2009)
Miracle Mia  (Updated On: 9/13/2009)
Life Histroy  (Updated On: 8/8/2009)
Ashlyn Grace  (Updated On: 6/23/2009)
Kayla Coyomani  (Updated On: 6/20/2009)
Zachary James  (Updated On: 4/20/2009)
Anton - my prince!  (Updated On: 4/5/2009)
A Brother  (Updated On: 3/23/2009)
Kendal Faith "Our miracle"  (Updated On: 2/19/2009)
James' Story  (Updated On: 9/9/2008)
Jesus' Story  (Updated On: 9/2/2008)
new diagnosis of ventriculomegaly  (Updated On: 8/28/2008)
A worrying time  (Updated On: 8/11/2008)
Chloe's a Fighter!  (Updated On: 8/10/2008)
Madison's story ( My miracle)www.littlemadisonrocks.com  (Updated On: 6/9/2008)
(Amy) Our walk with hydrocephalus  (Updated On: 6/5/2008)
alfies story  (Updated On: 5/29/2008)
tylers story  (Updated On: 5/21/2008)
My little girl's story  (Updated On: 5/18/2008)
Jameson's Story  (Updated On: 5/10/2008)
Kadyns Story  (Updated On: 4/19/2008)
our walk with hydrocephalus  (Updated On: 4/15/2008)
Sophia's Story  (Updated On: 4/11/2008)
Jonathan  (Updated On: 3/4/2008)
mommy's soulja boy  (Updated On: 2/19/2008)
Cayman's story  (Updated On: 1/24/2008)
Caleb's Story  (Updated On: 1/6/2008)
Noah's story-twin B  (Updated On: 12/20/2007)
Elisabeth  (Updated On: 12/3/2007)
Victoria's Story  (Updated On: 8/15/2007)
Elizabeth Faith's Story  (Updated On: 8/12/2007)
Nancy's Story  (Updated On: 1/17/2007)
Ginger's Story  (Updated On: 11/17/2006)
 
Family Blogs and Websites

Many families have their own blogs or websites where they share the details of their journey and these are listed below. If you would like to add yours then click here.
 
alice kubac's blog
Amy Faith our Hero!
Ashlyn Grace
Avery Marie
Bryleigh Marie
Carter-Brave with Hydrocephalus
eat. make.live
Elijah (The Later Entries)
Elijah's Story (The Early Entries)
Jared Joshua Orner
Jobe's Journey
Kadyn's Story
Lilah Bea
Lillian Grace Danielle
Miracle Mia
Oh Audrey Sue
Our Baby Boy's Journey
So This is Holland?
Teagan's place
Tessa Hope
The Beautful Cayman Cindy
The Higgins Family
The Kinnairds
The Soldatke Family
The Sorenson Family
Tyler's Trip
Tyler's Trip (Early entries)
Violet's Journey with Hydrocephalus & Microphthalmia
We're all just seeds
 


Legal Disclaimer: While every effort has been made to make certain that the information contained in this website is accurate, it must be remembered that the content is managed by a parent, not by a doctor. Information contained here is for general support purposes only and is no substitute for the care of a doctor.