This is the place where you can share your stories to give other parents much needed information about what they might be able to expect. There are many different causes of hydrocephalus and every case is different, but it is still helpful to hear from people that have actually been through this.

**Note - This feature has recently been upgraded so that you can add updates to your original story. If you have added updates in the past I have moved them to be with your original story. You can now add updates by going to your original story and clicking on "Add Update" at the top of the page.
 
Stories Shared Here on FetalHydrocephalus.com

If you would like to share a story, please click here.
 
James' Story  (Updated On: 9/9/2008)
Jesus' Story  (Updated On: 9/2/2008)
new diagnosis of ventriculomegaly  (Updated On: 8/28/2008)
A worrying time  (Updated On: 8/11/2008)
Chloe's a Fighter!  (Updated On: 8/10/2008)
Kendal Faith "Our miracle"  (Updated On: 8/7/2008)
Madison's story ( My miracle)www.littlemadisonrocks.com  (Updated On: 6/9/2008)
(Amy) Our walk with hydrocephalus  (Updated On: 6/5/2008)
alfies story  (Updated On: 5/29/2008)
tylers story  (Updated On: 5/21/2008)
My little girl's story  (Updated On: 5/18/2008)
Jameson's Story  (Updated On: 5/10/2008)
Kadyns Story  (Updated On: 4/19/2008)
our walk with hydrocephalus  (Updated On: 4/15/2008)
Sophia's Story  (Updated On: 4/11/2008)
Jonathan  (Updated On: 3/4/2008)
mommy's soulja boy  (Updated On: 2/19/2008)
Cayman's story  (Updated On: 1/24/2008)
Caleb's Story  (Updated On: 1/6/2008)
Noah's story-twin B  (Updated On: 12/20/2007)
Elisabeth  (Updated On: 12/3/2007)
Victoria's Story  (Updated On: 8/15/2007)
Elizabeth Faith's Story  (Updated On: 8/12/2007)
Nancy's Story  (Updated On: 1/17/2007)
Ginger's Story  (Updated On: 11/17/2006)
 
Family Blogs and Websites

Many families have their own blogs or websites where they share the details of their journey and these are listed below. If you would like to add yours then click here.
 
Bryleigh Marie
eat. make.live
Elijah (with the whole Averett Family)
Elijah's Story (The Early Entries)
Kadyn's Story
Oh Audrey Sue
Teagan's place
The Beautful Cayman Cindy
The Higgins Family
The Soldatke Family
The Sorenson Family
Tyler's Trip
Tyler's Trip (Early entries)
 


Legal Disclaimer: While every effort has been made to make certain that the information contained in this website is accurate, it must be remembered that the content is managed by a parent, not by a doctor. Information contained here is for general support purposes only and is no substitute for the care of a doctor.