The Amazing Owen
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Thanks for the video! Loved it! He is such an inspiration to us. Our Jonah will be 3 next week and we are looking forward to what God has in store for him! We keep Owen in our prayers!
Comment By Debbie Riley At 10/5/2012 7:12 AM
By far my favorite update! His giggles are so contagious!
Comment By Christie At 10/5/2012 7:46 AM
Comment By Melissa At 10/5/2012 11:54 AM
My daughter is 5 months pregnant and we are just starting with a diagnosis of hydrocephalus with the ultrasound. She is scheduled for more testing on Tues. We are very upset with this information. After spending time on your website tonight, Owen has given me some hope.We live in Pittsburgh, PA so hopefully the medical teams will be helpful. I am certainly going to encourage the cord blood infusion if and when we get that far. Thank you thank you for your web site!! I may be able to get some sleep tonight.
Comment By Alice Mascherma At 1/5/2013 2:31 AM

Original Entry:
Giggling and Walking
Earlier this week Owen got his shiny new AFO's.  Actually, they are an AFO/SMO combo pack.  Here are the AFOs (Ankle-Foot Orthotics for those who don't live special needs acronyms) with the shoes on:


and here they are with the shoes off:


Notice the busy bees - those were Owen's choice and he loves the color yellow.  And finally, you can take the AFO part off, and have just the SMO left behind:


This way he can build strength with just the SMO, but have greater support for walking.  And check out his greater abilities and confidence with the walker.  You can see where we started with the walker after his Chiari surgery here, but check out below to see what he can do now: (53 MB)

Or in a smaller version:

And just to make your absolute day, I will share Owen having a fit of giggles (possibly because Kathy the PT is tickling his belly while she holds him).  Guaranteed to make you giggle too!

Large File (88MB)

Smaller Version:


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